Overview
What is Institutional/Long-Term Care Abuse?
Long-term care (LTC) abuse is the intentional infliction of harm or injury on a resident of a long-term care facility, assisted living facility, or other residential care setting. Perpetrators may be nursing home or assisted living care staff, family or friends of the resident, other residents, professionals serving the facility, or visitors. The various types of abuse include:
- Physical abuse is the intentional or reckless use of physical harm or physical coercion that may result in bodily injury, physical pain, or impairment.
- Sexual abuse is non-consensual sexual contact of any kind with a LTC resident.
- Emotional/psychological abuse is the infliction of anguish, pain, or distress through verbal or nonverbal acts.
- Neglect is the refusal or failure of a caregiver or fiduciary to fulfill any part of a person’s obligations or duties of care to a LTC resident.
- Financial abuse is the illegal, unauthorized, or improper use of a LTC resident’s resources for monetary or personal benefit, profit, or gain, or that results in depriving a LTC resident of rightful access to, or use of, benefits, resources, belongings, or assets.
- Abandonment is the desertion of an older person by an individual who has assumed responsibility for providing care for a LTC resident, or by a person with physical custody of a LTC resident.[i]
Trans Specific Dynamics
Transgender LTC residents are vulnerable to types of institutional abuse and/or intimate partner violence that are trans-specific. Abusive behaviors towards trans people may include:
- Refusing to use the LTC resident’s correct name and pronoun;
- Calling the LTC resident pejorative names;
- Refusing to match the LTC resident with a roommate of their gender identity;
- Ridiculing the elder’s body;
- Refusing to allow the LTC resident to wear their preferred clothing;
- Ridiculing or belittling the resident’s identity, including declaring that the LTC resident is not a “real” man or woman;
- Eroticizing/fetishizing the LTC resident’s body against their will;
- Touching parts of the body the LTC resident deemed off-limits or calling body parts by names they know the LTC resident finds offensive;
- Refusing to touch the elder to perform supportive services such as help with bathing, toileting, or assistance with other activities of daily living;
- Threatening to “out” (disclose they are transgender) the LTC resident;
- Stating the LGBTQ+ community would be harmed if the abuse were revealed;
- Claiming no one would ever believe the LTC resident if they did reveal abuse;
- Telling the LTC resident no one will ever love them and/or that they could never find a better place to live;
- Denying the LTC resident access to hormones or medical treatment, prosthetics, or other trans-specific items.[ii]
People of any age may be in Long-Term Care Facilities, however, older trans/nonbinary people may have unique concerns. Trans elders who are now in a long-term care facility have likely experienced prior abuse or even decades of denigration, discrimination, and violence. This polyvictimization history has direct effects if they become a LTC abuse victim. Trans elders may be unable to recognize that what they are experiencing is abuse. For many, they may believe their experience is just normal based on history of how others have treated them. They may also believe that abusive behavior is what they can expect as a trans person. These beliefs may make them very reluctant to report abuse or consent to interventions since they don’t expect to ever find a better situation. They may be even more fearful of retaliation for reporting poor care or abuse than are other residents, given their history of discrimination and violence. They may also refuse interventions in order to protect themselves, in part due to the current anti-trans legislation aimed at reducing trans people’s rights.
Responses to Institutional/LTC Abuse
The systems set up to prevent and address LTC abuse are complex and overlapping. Nearly every nursing home accepts federal funding (such as Medicare and Medicaid), which means they are all covered by the federal Nursing Home Reform Act (NHRA).[iii] This law provides some broad standards of care. Nursing facilities must “protect and promote the rights of each resident…[including] reasonable accommodation of individual needs and preferences.” They must also provide care and services that help residents “attain or maintain highest practicable physical, mental, and psychosocial well-being.” The law also articulates a long list of resident rights, one of which is the right to be free from physical or mental abuse, corporal punishment, and involuntary seclusion. It set up a system of surprise inspections carried out by each state’s licensing and certification agency. In addition to the inspections, these state offices also accept and investigate complaints, which may include allegations of abuse or neglect. A directory of state survey agencies is available at https://www.cms.gov/medicare/health-safety-standards/quality-safety-oversight-general-information/contact-information.
The federal Older Americans Act (OAA)[iv] set up the long-term care ombudsman program (LTCOP),[v] which, among other things, is tasked with identifying, investigating, and resolving complaints made by or on behalf of LTC residents. Every state, by law, must have at least one state Ombudsman, but most have many regional and local ombudsmen, and many use volunteer ombudsmen, as well.
In 2023, the U.S. Supreme Court ruled that nursing home residents can also sue their nursing home for violations of their federal rights.[vi]
Assisted living facilities are regulated by each state, so care requirements and enforcement mechanisms vary. A great deal of information, including a guide to each state’s law, is available at https://www.aplaceformom.com/caregiver-resources/articles/assisted-living-violations
Note: Many federal laws and acts are going through administrative changes, with some guiding documents becoming less protective of transgender individuals, people with disabilities, people who are not white, and individuals who are undocumented. Please check the law or act for clarification about any changes made about levels of protection and care recommendations.
Key Tips for Service Providers
- Always remember that LTC abuse survivors live 24/7 in the facility in which their abuse or neglect took place. Even if perpetrators are removed from the facility, residents may fear staff will retaliate against them for exposing a problem. Carefully consider and plan for the possibility of retaliation. If the resident needs to move, consider using the LTC Equality Index directory to see if there is an available LGBTQ+-savvy facility.
- Providers don’t need to be experts in working with trans residents in order to respectfully and effectively work with trans clients. Asking and using everyones name of use and pronouns are a key place to start. Your commitment to your job and treating all clients with respect will help ensure a positive dynamic.
- Become familiar with HIPAA[vii] and the regulations governing resident privacy and dignity.[viii] Both should prevent a well-run facility from sharing a resident’s private information (including their transgender identity or history).
- Always determine and consistently use the resident’s name and pronoun that they shared with you. Discuss with the resident if they would like you to correct others who may misgender them.
- Spend as much time as possible developing rapport with the resident to develop trust. Once trust has been established, you can gently explore how the trans elder sees their current situation and options.
- Consider offering to train or arrange for LGBTQ+ cultural competency training to help staff provide better care. LGBTQ+ aging-specific training resources and skilled trainers are available from SAGE. The LGBT Aging Center has a handout for front-line workers.
- Always get permission from the resident before you disclose their transgender status to anyone. If possible, negotiate exactly what will be shared. This includes family members, who in rare cases may not know the elder is trans or may be opposed to their identity.
- Younger, trans and queer professionals need to appreciate how different life was for trans elders decades ago, and be respectful of their language, self-protective behaviors, and trauma aftereffects. Some elders may use terms that were affirming decades ago but might be considered offensive today.
Case Examples
Because she had no family or friends to help with her recuperation, Maggie Jones, an 84-year-old trans woman, was admitted to a nursing home after a short hospital stay. The nursing home had had some LGBTQ+ cultural competency training and knew to assign Maggie a female roommate, refer to her as “she,” and helped her dress in the feminine clothes she brought with her to the nursing home . Although Maggie had told the hospital social worker she had no family, there were estranged nieces and nephews. Because Maggie owned significant assets, these family members kept track of Maggie from afar. When they learned that Maggie was in a nursing home, they showed up unannounced. They had to produce a few documents to prove they were, in fact, M. Jones’s family members, but they were eventually escorted to the resident’s room. At first the family insisted they’d been taken to the wrong person, but they soon understood the woman in the bed was, in fact, their “uncle.” They were appalled and created quite a scene, insisting that their “uncle” be dressed in men’s clothing and moved to a room with a male roommate. The staff maintained that those kinds of decisions were up to Maggie, but Maggie was strangely silent, as though frozen in fear. The staff eventually agreed with the family members just to get them to leave, as they were upsetting the whole floor. When staff returned to Maggie, she continued to act frozen for some time. When she eventually began to talk, staff asked her how she wanted to proceed. “Do what they say,” she muttered. So they did.
Discussion questions
- What policies might this facility have about where to place residents related to their gender identity, gender expression, or legal gender status?
- What conversations could staff have with Maggie after her family left, when she settled after their departure?
- If staff believed there could be financial abuse, what kinds of support or resources could be offered to Maggie to help protect her and her assets?
- In your state/jurisdiction, what rights or leverage do family members have that might impact Maggie’s quality of life, agency, or decision-making?
Statistics
| Findings | Demographics | Links |
| Transgender older adults are at significantly higher risk of poor physical health, disability, depressive symptomatology, and perceived stress compared to LGB age peers. There are also significant indirect effects of gender identity on health outcomes via fear of accessing health services, internalized stigma, victimizations, and lack of social support. Transgender older adults reported 11 incidents of lifetime discrimination and victimization, compared with an average of 6 for nontransgender LGB older adult participants.[ix] | 2014 report from national cross-sectional survey of lesbian, gay, bisexual, and transgender older adults aged 50 and older (N=2,560). | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4013724/
|
| 66% of gender minority adults had some level of concern about their health care being potentially compromised because of discrimination. | 264 gender minority respondents age 45 and up. | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10441248/ |
| Staff refused to refer to trans resident with preferred name or pronoun in 9% of responses (80 incidents)[x] | 2010 U.S. study of 769 LGBTQ LTC residents, family members, or staff | https://pubmed.ncbi.nlm.nih.gov/34233601/ |
| Transgender and nonbinary (TNB) individuals report greater subjective cognitive decline compared to non-TNB people. Those reporting experiencing discrimination in medical settings had 4.5 times higher odds of reporting worsening memory (17%) and were 7.5 times more likely to report poor/fair memory (16%).[xi] | 115 trans elders aged 50+ from national LGBT cross-sectional survey. | https://pubmed.ncbi.nlm.nih.gov/35954522/ |
| One-third of trans/gender diverse individuals reported gender-related medical misattribution and invasive questioning (“trans broken arm syndrome”) consisting of assumptions of disordered thinking and being; hyperfocus on aspects of the medical transition; cultural ignorance and incompetence; and dismissiveness of the patient.[xii] | 147 trans/gender diverse individuals aged 18-47. | https://www.sciencedirect.com/science/article/abs/pii/S0277953623001041?via%3Dihub |
| Trans people who reported lifetime healthcare mistreatment (33%) had greater odds of avoiding healthcare during the past year due to anticipated mistreatment.[xiii] | 2,024 adult gender expansive people. | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9701649/ |
| 52.5% of trans older adults had a disability.[xiv] | 205 trans adults age 50+ from national cross-sectional survey. | https://www.cambridge.org/core/journals/ageing-and-society/article/abs/historical-and-social-forces-in-the-iridescent-life-course-key-life-events-and-experiences-of-transgender-older-adults/E1F5C3A1B27978DA72F6F1A631F293BE |
Resources
- Person-centered, trauma-informed care of transgender older adults
- How to be an ally to transgender older adults
- LGBTQ+ inclusive intake + engagement for elder justice professionals
- Safety planning: A guide for transgender and gender non-conforming individuals who are experiencing intimate partner violence
- Transgender power and control tactics
- U.S. Department of Justice Elder Justice Initiative — federal elder abuse efforts
- A directory of state survey agencies is available here.
- Assisted living facilities are regulated by each state, so care requirements and enforcement mechanisms vary. A great deal of information, including a guide to each state’s law, is available here.
- “I have a new transgender client…now what?” (guide for front-line nursing home and home care workers)
- Nursing Home Reform Act of 1987
- Long-Term Care Equality Index – search for long-term care facilities that have shown an interest in LGBTQ issues
- ifax. “How to avoid common HIPAA violations in nursing homes.”
- The National Consumer Voice for Quality Long-Term Care. Residents’ Rights.
Resources for additional staff training
- SAGECare: LGBTQ+ Aging Education: Experts skilled trainers are available at https://sagecare.org/
Resources for survivors
- Residents’ rights and the LGBT community: Know YOUR rights as a nursing home resident
- Emotional safety planning: Tools for your well-being before, during, and after a crisis (webinar)
- A self-help guide for LGBT older adults and their caregivers & loved ones: Preventing, recognizing, and addressing elder abuse
- Hear Me – App-based LGBTQ competent support available by text; SAGE partner
- A directory of state survey agencies is available here.
- The National Consumer Voice for Quality Long-Term Care. Residents’ Rights.
- Long-Term Care Equality Index – search for long-term care facilities that have shown an interest in LGBTQ issues
- Planning for lifelong care: Guiding questions for transgender and non-binary people to plan for dementia and other serious illnesses
- National adult protective services association
- Lambda Legal – legal help desk, focus on LGBTQ+ seniors’ discrimination
- LGBTQ+ veteran care coordinators
- Finding an LGBTQ+ inclusive long-term care community
[i] Department of Justice. (2022). Elder Abuse and Elder Financial Exploitation Statutes | EJI | Department of Justice. Www.Justice.Gov. https://www.justice.gov/elderjustice/prosecutors/statutes
[ii] FORGE. (2013). Trans-specific power and control tactics. https://forge-forward.org/wp-content/uploads/2020/08/power-control-tactics-categories_FINAL.pdf
[iii] Omnibus Budget Reconciliation Act of 1987. Public Law 100-203. 100th Congress. https://www.govinfo.gov/content/pkg/STATUTE-101/pdf/STATUTE-101-Pg1330.pdf
[iv] Administration for Community Living. Older Americans Act. https://acl.gov/about-acl/authorizing-statutes/older-americans-act
[v] The National Long-Term Care Ombudsman Resource Center. https://ltcombudsman.org/about/about-ombudsman
[vi] Center for Medicare Advocacy. (2023). Supreme court victory for court access and nursing home residents. https://medicareadvocacy.org/victory-for-nursing-home-residents-at-the-supreme-court/
[vii] Ifax. How to avoid common HIPAA violations in nursing homes. https://www.ifaxapp.com/hipaa/hipaa-rules-for-nursing-homes/
[viii] The National Consumer Voice for Quality Long-Term Care. Residents’ Rights. https://theconsumervoice.org/issues/recipients/nursing-home-residents/residents-rights
[ix] Fredriksen-Goldsen KI, Cook-Daniels L, Kim HJ, Erosheva EA, Emlet CA, Hoy-Ellis CP, Goldsen J, Muraco A. Physical and mental health of transgender older adults: an at-risk and underserved population. Gerontologist. 2014 Jun;54(3):488-500. doi: 10.1093/geront/gnt021. Epub 2013 Mar 27. PMID: 23535500; PMCID: PMC4013724.
[x] Anderson JG, Flatt JD, Cicero EC, Kittle K, Myers CR, Rose KM, Wharton W. Inclusive Care Practices and Policies Among Sexual and Gender Minority Older Adults. J Gerontol Nurs. 2022 Dec;48(12):6-15. doi: 10.3928/00989134-20221107-03. Epub 2022 Dec 1. PMID: 36441066; PMCID: PMC10441248.
[xi] Lambrou NH, Gleason CE, Obedin-Maliver J, Lunn MR, Flentje A, Lubensky ME, Flatt JD. Subjective Cognitive Decline Associated with Discrimination in Medical Settings among Transgender and Nonbinary Older Adults. Int J Environ Res Public Health. 2022 Jul 27;19(15):9168. doi: 10.3390/ijerph19159168. PMID: 35954522; PMCID: PMC9368374.
[xii] Catherine S.J. Wall, Alison J. Patev, Eric G. Benotsch, Trans broken arm syndrome: A mixed-methods exploration of gender-related medical misattribution and invasive questioning, Social Science & Medicine,
Volume 320, 2023, 115748, ISSN 0277-9536, https://doi.org/10.1016/j.socscimed.2023.115748.
[xiii] Clark KD, Luong S, Lunn MR, Flowers E, Bahalkeh E, Lubensky ME, Capriotti MR, Obedin-Maliver J, Flentje A. Healthcare Mistreatment, State-Level Policy Protections, and Healthcare Avoidance Among Gender Minority People. Sex Res Social Policy. 2022;19(4):1717-1730. doi: 10.1007/s13178-022-00748-1. Epub 2022 Jul 15. PMID: 36458212; PMCID: PMC9701649.
[xiv] Fredriksen-Goldsen K, Emlet CA, Fabbre VD, et al. Historical and social forces in the Iridescent Life Course: key life events and experiences of transgender older adults. Ageing and Society. 2024;44(7):1700-1722. doi:10.1017/S0144686X22000563
